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Contact: Trudy Holmes (trudy@php.com), Tel: 408 727-5775 |
Due to the number of requests we receive for information about the diet, I will tell you that many of the the best resources are listed below.
Start by getting the book "The Epilepsy Diet Treatment" - A book by Freeman, Kelly
and Freeman and learn as much as you can. Use our Amazon link and order it now!
There is another book called "The Ketogenic Diet" by Lyle McDonald, written more for dieters
but has a great deal of great information about how the diet works and its
effects.
Often, people want a copy of the diet. There is no "copy" of any
sort to get because the diet is based on each individuals caloric needs, height,
weight, age and other medical needs. The diet is an individualized program for
each person that needs to be refined to their needs. It is deficient in many
nutrients so supplements are necessary. It is no party to start this diet, it
requires buy-in by the entire family as everyone in the household is affected is
some way. However, when it works, it's worth the effort.
Informed health
care professionals are vital to the success of the diet and ongoing care while
on the diet is essential. It may take a few months of "fine-tuning" to achieve
seizure control.
Keto Centers in the U.S.
http://www.mynchen.demon.co.uk/Ketogenic_diet/Centres/United_States.htm
Keto Centers Worldwide: http://www.neuro.jhmi.edu/Epilepsy/Peds/ketoworldwide.htm
Resources:
Keto Meal Planner
December 1996 release. (What I still use in 2004 when working with others - and love!) This version has a pull down listing of foods. - You can change the foods in the list but you'll need some help understanding this feature first. You may always call or email me. Be sure to double check food values with vendors as they do change. There is a great website (isn't the web wonderful?) to get food values from the USDA website. Just type in the food and you can then ask for the 100 gram count. I tried it and found it easy to use.
This is a self extracting file, which means you need only double click on it to expand the file. I strongly urge you to get and review the file below. The file name will be mealplnr.xls
Lowcarbcafe.com It also has a link to a hidden carb finder tool.
Meal Planner
Help Files
Great Explanation and Samples of How to Use the Meal
Planner using Excel, developed by Mike Gillick and the template that Stanford
Medical Center distributes.
Help1
Help2
Help3
Help4
Help5
(Be
Sure to check food values with food manufacturer, this comes with many food
values in the program but they can be modified to meet your needs.)
Yahoo Groups has a great Ketogenic Diet List where you can communicate with other parents facing the same issues:
Tips From a Keto Mom - Many practical tips to get ready and a few great resources I used.
- Specialty Cheese Company - A low carb crunchy cheese snack. Delicious new snack made of nothing but natural cheese and spices. It's baked to crunchy, delicious perfection.
- Ketogenics Specialists H-B Drugs - Full service compounding
pharmacy specializing in creating customized medications in order to most
appropriately suit a patient's unique needs with a special interest in pediatric
epilepsy and the ketogenic diet.
1-888-383-2010 or 1-201-997-8488 FAX 1-201-9978488 located in N. Arlington, NJ. - Ketogram© Volume 1 (Archive - No longer published)
Should you need immediate assistance or a parent-to-parent contact please phone PHP's office at (408) 727-5775. PHP provides a forum for parents and professionals to get information. PHP does not promote or recommend any treatment, therapy, institution or professional.
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