Seizure Support Network Group
A resource packet to acquaint families with epilepsy and seizure disorders is available by calling our office at 408.727.5775. If you would like to speak to another parent that has a child with similar issues, don't hesitate to call us to request a mentor parent. PHP received a grant to provide parent/professional support and education to Bay Area families. Please check back frequently our scheduled events or contact us to be placed on our mailing list for seizure related events info@php.com PHP's Seizure and Epilepsy Network meets the 1st Thursday of each month from 6:30 to 8pm at PHP. Come share information and resources with other parents who understand the challenges of raising a child with seizures. This group features group discussion and speakers on a variety of of topics relating to seizures. New families are always welcome.
Our group will not meet in January, as our scheduled speaker is not able to present.
NEW! "The Epilepsy and Seizure Disorder Guide: A Resource Guide For Parents" is now available here! Download Now Children are one of life ’s greatest gifts. As parents, we want to do all we can to nurture and take care of our children. As a parent of a child with epilepsy, also referred to as seizure disorders, you face the additional challenge of learning as much as you can about your child ’s special needs. This Guide was written with you in mind. It was written to give you some very basic information, including an introduction to epilepsy and seizure disorders. It is not intended to provide medical advice. Any questions related to the medical treatment of your child should always be addressed to your child ’s pediatrician/family physician or neurologist.While this Guide may not provide all of the information you are looking for, it should help you begin your search. Throughout ( this Guide) , we include information about additional resources that we hope will be useful as you begin this journey – a journey that is likely to evolve as you become more knowledgeable about your child’ s condition. Clearly not every parent needs or seeks the same information, so take from this information what applies and is of value to you and your child.You can now order your own copy of : Epilepsy and Seizure Disorders: A Resource Guide for Parents! The purchase price includes postage and shipping.I would like to purchase: Color: $10 each. Number of copies: English ____Spanish ____ Black and white: $5 each. Number of copies: English ____Spanish ____ Full Name________________________________________________________________ Address: _________________________________________________________________ City____________________________ State________Zip: ______________ E-mail:____________________________________________________________________ I am paying with a check (see enclosed) Checks and money orders should be made payable to: Childrens Hospital Los Angeles. I am paying with a credit card Name on Card_______________________________________________________________ Charge $ _________to my Visa MasterCard other____________________#_________________________________ Exp. Date______ / ______ Signature_________________________________________________ Please mail this form with your check or Credit card information to: Cary Kreutzer, USC UCEDD CHLA, 4650 Sunset Blvd., MS #53, Los Angeles, CA 90027-6062 Any questions/feedback? Please email mouna@php.com!
Our PHP Library has a wealth of videos and books on the topic of seizure disorders and our librarian is happy to assist you in locating them.
There are many other resources that are available to assist you. Epilepsy Foundation of America www.efa.org The Epilepsy Network in Santa Cruz http://www.epilepsynetwork.org Learn about the Vagal Nerve Stimulator http://www.cyberonics.com/ Information about seizure surgery http://www.neuro.jhmi.edu/Epilepsy/surgery.html The International League Against Epilepsy (ILAE) http://www.ilae-epilepsy.org/index.cfm Ketogenic Diet information
To request these documents be emailed to you (maximum of 5), please send your request to mouna@php.com. For grant purposes, please include the following information with your request for materials:
Should you need immediate assistance or a parent-to-parent contact please phone PHP's office at (408) 727-5775. PHP provides a forum for parents and professionals to get information. PHP does not promote or recommend any treatment, therapy, institution or professional. |
|
|||||||||||||
|