Seizure Support Network Group
Contact: Parents Helping Parents Staff (mouna@php.com), Tel: 408 727-5775

A resource packet to acquaint families with epilepsy and seizure disorders is available by calling our office at 408.727.5775. If you would like to speak to another parent that has a child with similar issues, don't hesitate to call us to request a mentor parent.

PHP received a grant to provide parent/professional support and education to Bay Area families. Please check back frequently our scheduled events or contact us to be placed on our mailing list for seizure related events info@php.com

PHP's Seizure and Epilepsy Network meets the 1st Thursday of each month from 6:30 to 8pm at PHP. Come share information and resources with other parents who understand the challenges of raising a child with seizures. This group features group discussion and speakers on a variety of of topics relating to seizures. New families are always welcome.
Our group will not meet in January, as our scheduled speaker is not able to present.

NEW!  "The Epilepsy and Seizure Disorder Guide: A Resource Guide For Parents" is now available here!  Download Now

Children are one of life ’s greatest gifts. As parents, we want to do all we can to nurture and take care of our children. As a parent of a child with epilepsy, also referred to as seizure disorders, you face the additional challenge of learning as much as you can about your child ’s special needs. This Guide was written with you in mind. It was written to give you some very basic information, including an introduction to epilepsy and seizure disorders. It is not intended to provide medical advice. Any questions related to the medical treatment of your child should always be addressed to your child ’s pediatrician/family physician or neurologist.

While this Guide may not provide all of the information you are looking for, it should help you begin your search. Throughout ( this Guide) , we include information about additional resources that we hope will be useful as you begin this journey – a journey that is likely to evolve as you become more knowledgeable about your child’ s condition. Clearly not every parent needs or seeks the same information, so take from this information what applies and is of value to you and your child.

You can now order your own copy of :

Epilepsy and Seizure Disorders: A Resource Guide for Parents!

The purchase price includes postage and shipping.

I would like to purchase:

�� Color: $10 each. Number of copies: English ____Spanish ____

�� Black and white: $5 each. Number of copies: English ____Spanish ____

Full Name________________________________________________________________

Address: _________________________________________________________________

City____________________________ State________Zip: ______________

E-mail:____________________________________________________________________

�� I am paying with a check (see enclosed)

Checks and money orders should be made payable to:

Childrens Hospital Los Angeles.

�� I am paying with a credit card

Name on Card_______________________________________________________________

Charge $ _________to my �� Visa �� MasterCard �� other____________________

#_________________________________ Exp. Date______ / ______

Signature_________________________________________________

Please mail this form with your check or Credit card information to:

Cary Kreutzer, USC UCEDD CHLA,

4650 Sunset Blvd., MS #53, Los Angeles, CA 90027-6062

Any questions/feedback? Please email mouna@php.com!


 
Our PHP Library has a wealth of videos and books on the topic of seizure disorders and our librarian is happy to assist you in locating them.

There are many other resources that are available to assist you.

Epilepsy Foundation of America www.efa.org

The Epilepsy Network in Santa Cruz http://www.epilepsynetwork.org

Learn about the Vagal Nerve Stimulator http://www.cyberonics.com/

Information about seizure surgery http://www.neuro.jhmi.edu/Epilepsy/surgery.html

The International League Against Epilepsy (ILAE) http://www.ilae-epilepsy.org/index.cfm

Ketogenic Diet information


The Epilepsy Foundation of Northern California has created a Toolkit of materials in PDF format for families and providers to use. The Toolkit includes the following documents:

  • Epilepsy in Children: Learning and School Performance
  • Epilepsy: Legal RIghts, Legal Issues
  • What Everyone SHould Know About Epilepsy
  • Me and My World Storybook
  • Because You Are My Friend (also in Spanish)
  • Seizure Recognition and First Aid
  • Kids and Seizures: Know the Hidden Signs (also in Spanish)
  • A Child's Guide to Seizure Disorders
  • Epilepsy: Talking to Your Doctor
  • Issues and Answers: Exploring your Possibilities, A Guide for Teens and Young Adults with Epilepsy
  • Children and Seizure, Information for Babysitters
  • Seizures, Epilepsy and Your Child (also in Spanish)
  • Finding Out About Seizures, A Guide to Medical Tests (also in Spanish)
  • Finding Out About Epilepsy, A Guide to Treatment (also in Spanish)
  • Answering your Questions about Epilepsy (also in Spanish)

To request these documents be emailed to you (maximum of 5), please send your request to mouna@php.com. For grant purposes, please include the following information with your request for materials:

  • your name, address, phone number,
  • child’s name, birthdate and disability,
  • languages spoken at home, race, number of children and adults in the household and
  • whether you are contacting us as a parent or as a special education professional, and
  • your e-mail address. 


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Should you need immediate assistance or a parent-to-parent contact please phone PHP's office at (408) 727-5775. PHP provides a forum for parents and professionals to get information. PHP does not promote or recommend any treatment, therapy, institution or professional.

Seizure Support Network Events
 
More events...  
 

Seizure Support Network Websites
Epilepsy Foundation of America  
 
Epilepsy Foundation of Northern California  
 
Epilepsy in young Children  
 
PHP Ketogenic Diet Support  
 
Seizure Disorder/Epilepsy Fact Sheet by NICHCY  
 

The Parents Helping Parents (PHP) website lists many events and resources not sponsored by PHP. We do that to give families many opportunities to select those best suited to a particular need. We encourage you to obtain more information about all resources which interest you prior to selecting a provider or attending an event. Parents Helping Parents does not support or endorse any therapy, medication, or philosophy that families may encounter from the resources listed.

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